Public Involvement

Autoimmune rheumatic diseases, such as inflammatory arthritis, Lupus and vasculitis, can affect women during their childbearing years. The study aims to find out what women in the UK who have rheumatic diseases need to help improve their well-being during the planning of a pregnancy, pregnancy and early years of motherhood. This will help us to find out what support is already available to women within the UK and how this could be improved.

We have public involvement opportunities for:

  • Women who have suffered from any type of autoimmune rheumatic disease which has affected them between the ages of 18-49 years (e.g. Rheumatoid Arthritis, Lupus, Idiopathic Juvenile Arthritis, Psoriatic Arthritis, Vasculitis, Ankylosing Spondylitis, Sjogren’s Syndrome or Antiphospholipid Syndrome).
  • Individuals who have a family member who has or was affected by an autoimmune rheumatic disease while they were planning a family, pregnant or had young children.

We are looking for two people to formally join the STAR Family Study research team. This will involve attending occasional meetings in Cardiff (two or three meetings over the next 6 months). We will also occasionally get in touch between meetings to ask your advice on things or to ask you if you would be willing to have a look at some documents for us.

You need to be currently living in the UK and able to travel to occasional meetings in Cardiff. We are able to provide payment for your time, in line with the current Involving People rates, and cover your travel expenses.

You can apply for this opportunity by writing a brief 250 word description of why you would like to be considered for this opportunity, and telling us about any relevant experience that you have. Please e-mail this to STARFamilyStudy@cardiff.ac.uk .

We have other opportunities for members of the public to become involved in this study, such as:

  • joining our public involvement panel, who give us some informal feedback on ideas and communicating with the public as we go along. This can be done online or over the phone, so you don’t need to come to Cardiff in person to be on the panel.
  • coming along to our stakeholder event in Cardiff on the 25th January 2017 to help decide on research priorities in this area

Please get in touch if you’d be interested in any of these opportunities. If you have any questions, please don’t hesitate to contact the team at STARFamilyStudy@cardiff.ac.uk or on 029 20687809